Maddie Brown Brush has updated her fans on her baby daughter’s health after the little girl underwent amputation surgery.
The 24-year-old Sister Wives star shared the news with her followers on Instagram on Monday, posting a photo of her baby, Evangalynn Kodi, while they are in hospital.
The heartbreaking pic shows the baby’s left leg and right arm in bandages, following her operation.
Captioning the photo on the social media site, Maddie wrote: “Evie received some major gifts for her 1st birthday.
“Her surgeon laid the groundwork for her new foot and mobility it will bring, by way of a boyd amputation.
“Another gave her some extra mobility in her hand, by clipping her webbing she had in her right hand.”
The baby girl was born with oligodactyly, which is a congenital anomaly defined as the presence of fewer than five fingers on a hand.
Maddie has said that there was some good news in that she her baby had come home from hospital and was now “recovering beautifully” after her operations.
Evangalynn was born with a thumb and a toe missing as well as her leg missing a fibula.
This means that she didn’t have a calf bone and that she had a bowed tibia, which is commonly known as the shinbone.
Evangalynn also had two fingers fused together on her hand.
Maddie had shared the devastating news about her daughter’s diagnosis last October in an interview with PEOPLE.
She told them that they were “shocked” when doctors told them that their unborn baby had fibular aplasia, tibial campomelia and oligosyndactyly (FATCO) syndrome.
This is an extremely rare genetic disorder that affects bone formation in utero.
Maddie said: “I was just sitting there trying to comprehend what’s going on, having just had a baby as they are bringing in all these specialists. I was freaking out.”
It was only once Evangalynn was one that the best way of treating her could be sought.
Maddie has said that her daughter will grow up having “limitations, but not huge hindrances.”
She continued: “It’s abnormal, and it catches people off guard, but I want her to grow up and feel proud about who she is. “
If I’m hiding this to protect her, is it really helpful? So little is known about this, so I hope to bring awareness.
Maddie celebrated Evangalynn’s first birthday earlier this month and the reality star paid tribute to her daughter on Instagram.
Sharing a photo of her baby smiling while at the beach, Maddie wrote: “Happy 1st Birthday to my little spitfire ray of sunshine! It’s crazy how quickly this year flew by.”
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